Who We  Are

Tough Like Tori (TLT) is a nonprofit organization honoring the life and legacy of Tori DiLeo. Our mission is to advance research, support innovative treatments, and raise awareness for rare pediatric kidney cancers and sarcomas, including malignant PEComa and translocation renal cell carcinoma (tRCC). 

 

We fund research into TFE3-driven cancers, PeComa, and other pediatric sarcomas. We also support bereaved young adult siblings through bereavement scholarships, helping them pursue their education and goals while grieving the loss of a brother or sister to cancer.

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Through our 501(c)3 foundation, we are dedicated to funding initiatives that offer hope, improve outcomes, and honor the lives affected by these rare and often overlooked diseases.

Rooted in love.
Built to fight.

 

Tori DiLeo was a fighter. When she was diagnosed with malignant TFE3 PeComa — one of the rarest and most overlooked forms of pediatric kidney cancer — she faced it with a bravery that inspired everyone around her.

 

We envision a future where every child diagnosed with a rare pediatric kidney cancer has access to cutting-edge treatments, compassionate care, and a community that truly understands their journey. Where "rare" no longer means "without hope."

 

A world where no child fights alone — or without answers.

 

Through research funding, community-building, and relentless advocacy, TLT is working to change what's possible — one breakthrough, one family, one life at a time.

Keeping Tori’s memory alive is a life long commitment. Our board members are committed to raising awareness about childhood cancer, funding research into kidney cancer that affects children and young adults and their families. 

 

Nicole DiLeo - President (Tori’s Mom)

Juliana (Ani) DiLeo  - Co-President (Tori’s Sister)

Jerry DiLeo - VP (Tori’s Dad)

Kimberly Paolercio - Treasurer

Melissa Giorno - Secretary

Phyllis Marto - Fundraising Coordinator

Lauren Levine - Junior Board Coordinator