Who We  Are

Tough Like Tori (TLT) is a nonprofit organization, honoring Tori DiLeo by raising funds for pediatric kidney cancers, including PeComa and tRCC (Translocation Renal Cell Carcinoma).

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Our mission is to advance research, support innovative treatments, and raise awareness for rare pediatric rare kidney cancers, including malignant PeComa.

 

Through our 501(c)3 foundation, we are dedicated to funding initiatives that offer hope, improve outcomes, and honor the lives affected by these rare and often overlooked diseases.

Rooted in love.
Built to fight.

 

Tori DiLeo was a fighter. When she was diagnosed with malignant TFE3 PeComa — one of the rarest and most overlooked forms of pediatric kidney cancer — she faced it with a bravery that inspired everyone around her.

 

We envision a future where every child diagnosed with a rare pediatric kidney cancer has access to cutting-edge treatments, compassionate care, and a community that truly understands their journey. Where "rare" no longer means "without hope."

 

A world where no child fights alone — or without answers.

 

Through research funding, community-building, and relentless advocacy, TLT is working to change what's possible — one breakthrough, one family, one life at a time.

Keeping Tori’s memory alive is a life long commitment. Our board members are committed to raising awareness about childhood cancer, funding research into kidney cancer that affects children and young adults and their families. 

 

Nicole DiLeo - President (Tori’s Mom)

Juliana (Ani) DiLeo  - Co-President (Tori’s Sister)

Jerry DiLeo - VP (Tori’s Dad)