HOME | Tough Like Tori

Honoring Tori DiLeo by funding research, advancing treatments, and giving hope to families who need it most.

Our Mission

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Be Part of the Fight!

Join our community to fund research, support families, and bring hope to children battling rare kidney cancers.

Join Us

“Small acts.

Life-changing impact.”

Photo Mar 04 2026, 10 35 35 AM (5) (1).jpg

Facts & Figures

Understanding the Urgency

1/1m

People Worldwide

PeComa affects roughly 1 in 1 million—making it one of the rarest cancers and one of the most underfunded.

100-300

U.S. Cases Annually

With so few diagnoses each year, research funding and awareness remain extremely limited.

<1%

<1% of Kidney Cancers are PeComa

Malignant cases in children are among the rarest of all pediatric cancers.

About Us

Tough Like Tori Foundation (TLT) is a nonprofit organization, honoring Tori DiLeo.

She passed away in August 2025, at the age of 18 from TFE3 PeComa, a rare and aggressive kidney cancer.

Tori was a National Honor Society Student, an avid tennis player, graduated Cum Laude and was loved by all who knew her. She continued her junior and senior years of high school via distance learning, while undergoing various treatments and surgeries. All while continuing to make honor roll each quarter. She never gave up and never backed down from her disease, or anyone!

Upcoming Events

Join Us. Make an Impact.

September is Pediatric Cancer Awareness Month—and we're going gold for Tori!

Tori was diagnosed with TFE3-rearranged PEComa, an exceptionally rare cancer. This September, the Tough Like Tori Foundation is inviting our community to tie a gold ribbon on their mailbox to raise awareness and show support for children and families affected by rare pediatric cancers.

Suggested donation: $25

Delivered directly to Westchester addresses.
Order your ribbon today.

ORDER YOUR RIBBON